Button Issues - January 2008

Aagh! More button isuses. This silly button is driving me crazy. I mean don't get me wrong, I'm thrilled that Brynlyn has it because it supplies 99.9% of her daily nutrition. BUT...it can be a real nuisance sometimes.

Right now Brynlyn has some "hypergranulation tissue" which is basically when the body senses there is a foreign object and creates this granulation tissue in order to try to remove the foreign object from the body. It will go away sometimes with the help of a hydrocortisone cream, but often times it has to be taken off with silver nitrate, that basically burns the excess tissue off. We're still working with the cream and we haven't tried the silver nitrate yet, but if it continues to get worse, then we'll just have to resort to that at the DR office.

The biggest problem it's creating right now is that the button does not fit flush against her body and so it's breaking easily, causing me to have to put a new one in. We always have one extra button on hand, just in case the button does break. The stoma hole will close up within 4 hours of the button falling out. So if you don't get a new button in on time, then the hole will close and they have to do the surgery all over again to re-open the stoma opening so you can feed the child. STRESSFUL!!! Serious anxiety about this button right now.

These pictures are what her button looked like after it fell out of her stoma. You can see the balloon part at the bottom of the Nutriport button is stained brown, form the stomach contents, etc. It basically popped and created a slow leak in the button.